Thursday, October 05, 2006

We Have Not Fallen Off Planet Earth

It's just taken a long time to finally get settled and into a groove. Here's the short-short version of goings-on over the past 2 1/2 months:

I moved to Rhode Island on July 27 to start my 6-month school and Coleen and Elizabeth stayed in Philly with her parents. Gracie was still in the hospital at the time. Over the next 8 weeks, Coleen (with tremendous amounts of help from the family) took care of Lizzy and went to the hospital as often as possible to be with Grace. I drove down to Philly every weekend and spent Saturdays mostly with Col and Lizzy and Sundays with Grace before driving back to Newport. Grace had successful surgery because of her feeding issues and was discharged from the hospital at the end of August. Everyone stayed in Philly for the next three weeks to wait for Grace's follow-up appointment and, the weekend following, we all drove up to Newport together. This is the end of our third week finally living together as a family.

We have settled into a routine, the girls have been good (most of the time) about sleeping at night, and Coleen absolutely amazes me with how well she balances taking care of the kids, doing work around the house, and finding time to take care of herself (she's even been practicing Russian!). So, here are some photo highlights of the girls.



And both of them together:

Saturday, July 22, 2006

Holy Crap! An Actual Update!

It has been a while since the last update, and a very long time since the last new pictures. So here's the short version of what's been going on over the last month:

The staff and setup at Pennsylvania Hospital took some getting used to, but we both eventually felt comfortable there. The nursing staff is excellent and took great care of the girls.

Elizabeth was discharged from the hospital on July 18th and sent home on a heart monitor. She's been doing great so far, testing Coleen and I on everything that we learned while in the hospital. Her own personal routine has stayed basically the same since Boulder: sleep most of the day and scream for four hours at night, between the hours of 8:00 and 12:00. She's alert, feeding well, and sleeping longer each night.

Grace is also doing well but is still in the hospital. Her feeding issues have not resolved, but they're looking at discharging her relatively soon, having us feed her using the feeding tube until she is able to feed normally. The good news is that they ran blood tests for all kinds of stange and rare metabolic and genetic disorders and everything came back normal.

As for me, I moved up to Newport last week and started school on Monday, while Col and Elizabeth are staying with her parents outside of Philly. I'll be driving back here every weekend until I'm able to bring the whole family to Rhode Island.

And the part you really wanted to see: the pictures....

Here's Gracie, checking out here sister in the crib:

And this is Gracie, looking as precious as ever:

Col caught Lizzy looking out the window at the coming evening:

And here she is, right after a bath: